Review for Sociology written on the 1st February 1995
of
Michael Hirst and Sally Baldwin, Unequal Opportunities:
Growing Up Disabled, London, HMSO, 1994, £13, ix + 139 pp.
Based on a follow up study to the 1985 OPCS Surveys of
Disability, this study tries to reveal the extent to which the transition to adulthood
is experienced differently by young people with disabilities in comparison to
their able-bodied peers. Under
various chapter and sub-headings ("Living and Working Independently",
"Financial Independence"
and "Self Esteem and Personal Control" for example) Baldwin
and Hirst conclusively show to their own satisfaction that growing up disabled
is pretty unpleasant; and to top it all, it is probably the parents'
fault. As with the original OPCS
surveys, this study is firmly rooted in the medical model of disability
(disability as impairment and largely pathological), whilst ignoring every
advance made in the study of disability as a social construct (disability as
social, environmental, institutional and attitudinal barriers created by
society). Though Michael Oliver's
The Politics of Disablement (1990) text is acknowledged in the bibliography its
significance and sociological analysis - which make it the key text in relation
to disability of the twentieth century - is ignored. An omission which makes Unequal Opportunities seem flawed
and shallow, if not atavistic.
Unequal Opportunities does make passing references to the
disability movement and the social model of disability, but only to ignore its
principles in favour of advocating increased social and medical surveillance of
people with disabilities; even when the survey itself has revealed (p. 110)
that "loss of hospital services was not seen as a problem by the disabled
young people themselves". And
although Baldwin and Hirst are very good at highlighting certain inequities
that young disabled people endure (reduced income, twice as likely to be
unemployed, un-partnered and living at home with their parents for much longer,
and having almost no sense of their own worth) they never seem to be able to
see its cause as anything other than a pathological or psychological weakness
(i.e. parental protectiveness).
Social criticism is, in this book, completely avoided by
maintaining a narrow impairment based view of what disability is, and as such,
it lacks any degree of balance or value.
Though the authors state in the book that interpretation is not in the
remit of the study they constantly (on every page) interpret the data to
advocate generalised (impairment based) management of all people with
disabilities; any study that wishes to get to grips with how disability is
experienced differently to normality must accept that many of the conventional
relationships between the disabled and non-disabled are the very factors which
create and enhance the sense of alienation, despair and isolation that many
disabled people feel.
One of the most disappointing factors about the book is
that so many potentially exciting 'facts' about growing up disabled are
mentioned and then ignored: disabled people are in predominantly lower social
status families, women are more often the head of the household and the father
is more likely to be unemployed as well.
Exciting stuff, but ignored in favour of claiming that paternal
protectiveness is the key to understanding the disabled experience! Unequal Opportunities would be
essential reading on any course to do with disability, but only as an example
of the discourses that construct disability as something that it is not:
pathologically abject. From the
point of view of the books perspective one can only assume that it is aimed at
the very professions which are the most explicit in the negation of disability
(the medical and social services).
What is most amiss about this book is its simplified attitudes to
disability, despite its apparent claims to see it as complex (most
significantly it ignores major class issues), which finally undermine its
undoubted value for the few disabled/professional relationships that it could
have contributed towards improving.
University of Warwick
Paul Anthony Darke
615 words