Book Review for Disability and Society in 2004
of
DISABILITY AND SOCIETY – a review
Shelf Life
Edited by Katie O’Reilly, 2003
National Disability Arts Forum, Gateshead (UK)
Paperback (metal ring spine), iv + 104 pages
£ 15 (£10 unwaged). P&P: £3.60 (UK), £ 4.50 (Europe),
£ 9.20 (outside Europe). Available online at : http://ndaf.org/shelflife/press/orderform.html
Anthologies on a particular subject – any subject – have the potential
to suffer from the same problem: they often bore the reader to death with repetition.
As such, in an anthology of poetry, prose and images about death itself, one
has to be especially careful how it affects the reader. Does this anthology
suffer from such a problem: well, a little.
The anthology is fundamentally a collection of art works that offers ‘a
glimpse into the experiences of people with shortened lives’. The individual
pieces, almost without exception, are intelligent, well crafted and highly readable;
they are moving and thought provoking without being maudlin; they are short
yet precise; they are heartfelt and personal whilst also containing elements
of the universal (moving towards an understanding of the human condition). The
writers / creators of each piece deserve nothing but praise for their contribution:
for putting their fears, anxieties and ‘lives’ on the line on the
page.
So what is the problem? Partly it is the ‘Introduction’ by Geof
Armstrong; it sets the wrong tone and slightly misleads one into viewing the
anthology in a way that it does not deserve. For example, Armstrong writes that:
‘The Social Model of Disability is beautifully precise as a means of helping
us to identify those external hard aspects of being disabled. However, it struggles
when it comes to addressing the more emotional aspects of our lives, such as
sexuality, depression, isolation, pain and being aware that you might die within
a certain number of years of months.’ Immediately one is confronted with
a view that the anthology is in some sense a collection of pieces created with
some form or degree of a political consciousness (with a view to either reinforce
or challenge existing paradigms). Few pieces in the anthology are written with
any political consciousness at all. This would in itself not be a problem except
for the fact that the ‘Intro’ sets up such an expectation that is
only to be consistently betrayed. (This is apart from the fact that it also
reveals a misunderstanding and simplified view of the complexity of the Social
Model of Disability and the understanding of what impairment is – can
be – in relation to disability. But that is another issue!)
Having read the anthology in one sitting is not to be recommended. It is something
a reader / viewer should dip into on a regular basis (repeatedly) to enjoy.
And I do mean enjoy! Though the subject is highly emotional: full of acceptance,
betrayal and outrage at the contributors close relationship to the Grim Reaper.
The anthology is in itself somewhat enthralling, comforting and cathartic to
the reader (especially if they themselves have a close relationship with an
experience of ‘people with shortened lives’).
Though again, due to the ‘Introduction’, one is a little mislead
by the term ‘shortened lives’. A significant proportion of the contributions
are actually about chronic impairment (and the experience of impairment -which
the Social Model in no way denies or minimizes) or chronic and / or acute disease.
Again, not a problem in itself. The problem is that the reality of the anthology
reveals the Introduction to have been a false bearer of the contents. Nabil
Shaban’s ‘Foreword’ – which is exceptionally precise
and apposite – should have been the only introduction to the Anthology
as it is emotionally and individually relevant and less prescriptive; Shaban’s
piece allows the reader to enter the subsequent pieces on an entirely different
level and consciousness.
Finally, I would argue that there is a slight problem with the design of the
anthology: it is very large indeed (a 29 cm square with metal ring-binding spine
using thick paper). Thus, the design makes the anthology a clumsy and heavy
package to handle. Combined with this there is a real waste of paper due to
blank pages and an apparent excessive spacing and kerning of the text. On an
environmental basis the anthology is a cause of major concern. One cannot help
but feel that the design is part of the ever-troubled NDAF’s attempt to
make a bold statement about itself at the expense of the emotional roller-coaster
that is its contents. The anthology would have been better served by being an
independent, Disability Art free – much like NDAF itself, project.
The project that has led to Shelf Life has been in gestation at NDAF for nearly
a decade (!); a fact that has not helped the project find its own feet and way
on to the page. Though the anthology could have done without the confused politicking
of the Disability Arts movement (NDAF), and its relationship with its even more
confused funders (i.e., the Arts Council England), I would highly recommend
the anthology Shelf Life with one proviso: you tear out the Introduction.
Dr Paul A. Darke – director of www.outside-centre.com
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